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Devastated UK family watches 5-year-old dying from rare childhood dementia; hundreds of seizures daily

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Five-year-old Holly Nayler from Essex has CLN2 Batten disease, a rare and fatal form of childhood dementia that causes rapid neurological decline and frequent seizures. While an NHS-funded treatment cannot cure the condition, it has slowed the loss of her abilities. As access to the drug faces uncertainty, her family is calling for awareness and continued support.

from World News, Today World News, Latest International News, World Breaking News, Trending News of World - Times of India https://ift.tt/U0jNRhG

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